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Chronic Illness
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Websites
Practical advice to patients and significant others.
http://seniors-site.com/coping/chronic.html
Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
http://www.buchholzmedgroup.com/articles/PDF/Chronic.pdf
Paper discusses core skills, use in educational programs, effects on health status, key ingredients for more efficacy.
http://www.chronicdisease.health.gov.au/pdfs/lorig.pdf
Short explanation to counselors on defense mechanisms and coping styles of patients.
http://www.brandeis.edu/pcc/coping.html
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.
http://www.alpineguild.com/COPIN...%20WITH%20CHRONIC%20ILLNESS.html
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
http://www.expertpatients.nhs.uk/
How to recognize depression and when to consult the doctor.
http://www.mamsi.com/s/yh/copingwithchronicillness.pdf
Advice to family members, including communication, financial matters, independence and taking charge.
http://www.eldercareadvocates.com/pages/art22.htm
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
http://www.mindpub.com/topic16.htm
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
https://www.mylifepath.com/produ...y/MR15300.pdf?sec=medsup&pg=help
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
http://www.ahcpr.gov/research/elderdis.htm
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
http://nursing.unc.edu/crci/
Short description of the day to day acceptance process.
http://www.mult-sclerosis.org/ne...999/AcceptingChronicIllness.html
Personal advice on making adjustments and maintaining hope.
http://aces_autoimmune.tripod.com/copingb.htm
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
http://www.fathersnetwork.org/64...7735c199fab81f0a5e757533e8d4&s=0
Article explains how yoga helps to maintain and restore health by stretching and breathing.
http://www.cancerlinks.com/Yoga/illness.html
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
http://patienteducation.stanford.edu/programs/
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.
http://www.calgaryhealthregion.ca/cdm/
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
http://www.cdc.gov/pcd/
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
http://www.cdc.gov/nccdphp/overview.htm
A personal account of strategies for daily living.
http://showcase.netins.net/web/fmd/chronic/
The London Borough of Hackney offers support through council, community, and government agencies in the fields of jobs, leisure, transport and allowances.
http://www.hackney.gov.uk/index/life/yl-illness.htm
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
http://www.chroniclife.com
Tips and ideas on dealing with a chronic condition in daily life. Personal site.
http://www.xs4all.nl/~nvwagen/english/
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
A personal account of daily events aims to promote better understanding.
http://members.shaw.ca/zonaszone/illness/life.html
British Columbia's patient information with links to programs.
http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
Handbook gives short, practical advice how to handle serious illness and dying.
http://www.mywhatever.com/cifwriter/library/mortals/mor0.html
Describes adjusting to illness in the family, with several personal articles.
http://brightfield.org.uk/living/
Background paper also proposes multi-partnered data base renewal (2003).
http://www.phac-aspc.gc.ca/csc-c...veillance_background_paper_e.pdf
Explains how lifestyle changes can be effective in self-managing a condition.
http://www.dva.gov.au/health/health_promotion/chronic.htm
Seminar from The Pituitary Foundation's Third National Conference.
http://www.pituitary.org.uk/conference/2001/self-man.htm
Poem about coping with pain using relaxation and imagery.
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/pain.html
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
http://www.improvingchroniccare.org/
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
http://www.seniornet.org/php/def....php?ClassOrgID=5337&PageID=5541
British Columbia resources for physicians, patients and researchers. Includes success stories, reports, research and Chronic Care Model.
http://www.healthservices.gov.bc.ca/cdm/
Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
http://www.chronicillnet.org/
Dealing with the child's resentment and embarrassment. The importance of key events and acknowledging the child's own health complaints.
http://brightfield.org.uk/living/whenparents.html
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.
http://www.dol.gov/ebsa/publications/report2.htm
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.
http://www.thenewhomemaker.com/node/68558
Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/1031002459.html
http://www-hsl.mcmaster.ca/tomflem/chronic.html
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.
http://www.procovery.com
National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
http://www.caregiver.org
A psychologist offers strategies for dealing with painful illnesses.
http://www.tenresolutions.org
Harvard Health Publication Letter. Patient oriented advice.
http://www.health.harvard.edu/ne...ing_with_a_chronic_condition.htm