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Fragile X Syndrome
Websites
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
http://www.fraxsocal.org
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
http://www.fraxa.org/
A Policy Statement from the American College of Medical Genetics.
http://www.faseb.org/genetics/acmg/pol-16.htm
Single page on recognition of the condition in young children.
http://home.coqui.net/myrna/fragile.htm
Describing Fragile X Syndrome.
http://www.ich.ucl.ac.uk/cmgs/frax98.htm
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
http://www.fpg.unc.edu/~fx/
Creating a virtual research center in Israel to find a cure.
http://www.conquerfragilex.org
About QFXA, news, events, links and contacts. Also information of fragile X syndrome.
http://cwpp.slq.qld.gov.au/qldfragilex/
Support group for Family's who are dealing with Fragile X Syndrome.
http://groups.yahoo.com/group/fragilex/
From the Victorian Government, Australia.
http://hnb.dhs.vic.gov.au/commca...2744a256744000645a3?OpenDocument
One family's account of raising 3 children with Fragile X.
http://fragilex.ca
Information on this disease, medical aspects, education, references, contacts and what's new in Australia
http://www.fragilex.org.au/
Features information about the disease, its teatment, and inheritance.
http://www.fragilex.org/
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
http://www.pediatriconcall.com/f...seasesandcondition/fragile_x.asp
From the Victorian Government, Australia.
http://hnb.dhs.vic.gov.au/commca...AC3CCEE72744A256744000645A3?open