The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Providing accurate and timely information about the disorder to patients, family members and physicians.

Information about an e-mail mailing list. Also includes links to other online support groups.

Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

Personal site by which describes the pathology and gives a bit of advice.

The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.

Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.

A global information center providing links to Organizations around the world.

Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.

What the disease is and includes the impacts on daily life.

A Question-Answer format page of information.

Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.

Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.

Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.

A history of the pharoah along with theories applied to what he may have had, including Marfan's.

Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.

A tribute to a patient with this disease accompanied by information and links related to donating.

Marfan's patients diary of the diseases events in her life. Includes a list of links.

Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.

This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

Comprehensive guide to this connective tissue disease.

Support group in New South Wales, Australia.

Online interactive user community.

Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.

A comprehensive site including major resources listed as well as genetic information.

Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.

Article from eMedicine.

From the National Institutes of Health.

Article on the risks of sports participation.

Online chapter from The Merck Manual of Medical Information.

Irish charity with information on fund raising activities and the condition.