Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.

A parent's personal experience, relating her daughter's story.

Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Provides an article about Anencephaly.

An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.

Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).

Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.

A Christian pro-life support group for parents those carrying to term.

Global Health Network support group open to anyone affected by anencephaly.

Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.

Definition, epidemiology, pathogenesis, clinical features, investigations, and management of anencephaly from a healthcare workers perspective.

Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]

Online support group for women who have lost babies to anencephaly.

Information sheet compiled by the National Institute of Neurological Disorders and Stroke.