Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.

Large selection of informational articles and provides information about current research projects being funded.

World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers.

National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.

Information, current news, research grants and discussion forum. National organization.

Contact information for national office, family support services and fundraising.