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Huntington's Disease
Websites
Information about caring for people with Huntington's disease, for patients, families and professionals.
http://www.kumc.edu/hospital/huntingtons/
A charity site aiming to spread awareness, information, and news about Huntington's disease.
http://www.curehd.org
Research, assistance, and education.
http://www.hdsa.org
Supports people affected by the disease and provides information and advice to professionals.
http://www.hda.org.uk
Services of the Huntington's disease program of the University of Connecticut Health Center.
http://huntingtons.uchc.edu
A personal website detailing how Huntington's disease has affected Tony's family and friends.
http://www.bridger.freeuk.com
Information, questions and answers, problem-sharing, personal experiences and articles on Huntington's disease.
http://www.hdac.org
Comprehensive resource on Huntington's disease.
http://www.lib.uchicago.edu/~rd13/hd
A personal website with the story of a family affected by Huntington's disease (UK).
http://members.aol.com/jgriff2296/
Introduction to Huntington's disease, and an ask a doctor forum.
http://www.neurologychannel.com/huntingtons/
Nutritional information, and resource links on aspects of nutritional care for people with Huntington's disease.
http://www.lib.uchicago.edu/~rd13/hd/nutritn.html
Services of the Huntington's disease program of the University of Connecticut Health Center.
http://psychiatry.uchc.edu/huntingtons.php
Huntington's disease facts listed concisely.
http://ivory.lm.com/~mccarren/facts.html
Links to overviews, clinical trials, case reports, diagnosis, treatment, research programs on Huntington's disease.
http://www.healthubs.com/huntingtons
An information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_...medical/disorders/huntington.htm
Offers support for families living in the Australian states of New South Wales and the Australian Capital Territory. Includes resources and information about NSW.
http://www.ahdansw.asn.au/
Current information on treatments, drugs, support and patient resources.
http://hdlighthouse.org/
The clinic provides care from several perspectives for individuals with Huntington Disease (HD) as well as their families. Based at the University of British Columbia, Vancouver, Canada.
http://www.cmmt.ubc.ca/clinical/
Information for families with a child with juvenile HD or one at-risk. Includes at-risk, genetic testing/testing of children, related JHD and HD symptoms and how to recognize/help, types of therapies, various medication and drug searches, surgeries, procedures used in testing, suicide, divorce, disabilities, assisstive technology, support links, and benefits/insurance.
http://endoflifecare.tripod.com/juvenilehuntingtonsdisease/
Gives disease information, services available in Queensland Australia and links.
http://www.qahda.com/
Building a camp and advocacy programs for children and families of Huntington's disease.
http://generationsofhope.tripod.com/
Information for all families living with this disease including people with HD, caregivers, those at risk and young people.
http://huntingtondisease.tripod.com/
Information about Huntington Disease and HD support services available in Victoria.
http://www.ahda.com.au
Consumer health resource center providing information on the causes, symptoms, and treatment.
http://www.emedicinehealth.com/articles/39041-1.asp
Weblog with the latest information on research and news.
http://www.huntingtons.info
The clinic provides care from several perspectives for individual(s) with HD as well as their families.
http://www.cmmt.ubc.ca/research/clinical/HD_Clinical_Research/