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Muscular Dystrophies

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Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
http://www.beckermusculardystrophy.org

Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
http://www.dmdoptions.com

Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
http://www.urmc.rochester.edu/nihregistry/

Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
http://www.livingfortoday.org

Provides links to medical and non-medical organizations and people with Duchennes problems.
http://www.ducennes.addr.com/

This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
http://www.mda.org.au/publication/guide/mdaguide.html

A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
http://www.healthubs.com/dystrophy

Clinically-oriented information.
http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=-885719035

This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
http://www.doctorbach.com/

Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
http://www.see-search.com/musculardystrophycampaign.htm

Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
http://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html

Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
http://www.ygyh.org/dmd/

Provides support for those with Facio Scapulo Humeral and their carers.
http://www.fsh-group.org/index2.html

Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
http://www.dmdpioneers.org/

Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
http://www.angelfire.com/band/teja/index_dmd.html