newsletterlibrary.com

Top : Health : Conditions and Diseases : Neurological Disorders : Muscle Diseases : Muscular Dystrophies : Support Groups :
Chats and Forums

Websites
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
http://health.groups.yahoo.com/group/md-list

Mailing list for Christians who have Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/g...nsWithDuchenneMuscularDystrophy/

A mailing list/support group for people living with Duchenne Muscular Dystrophy. Family, caregivers and friends of those affected by DMD may also participate.
http://www.dmdpioneers.org/mailinglist/

Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/group/dmdsupport

International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
http://health.groups.yahoo.com/g...oup/Duchenne_Muscular_Dystrophy/

Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
http://health.groups.yahoo.com/group/dysferlin/

Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
http://health.groups.yahoo.com/group/FSH_Friends/

Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
http://health.groups.yahoo.com/group/FSHmusculardystrophy/

Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
http://health.groups.yahoo.com/g.../Limb_Girdle_Muscular_Dystrophy/

Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
http://health.groups.yahoo.com/group/mdaalltheway/

Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
http://health.groups.yahoo.com/group/muscledisease/

An online support group for people affected by any neuromuscular condition.
http://health.groups.yahoo.com/g...up/The_Muscular_Dystrophy_Forum/

Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
http://health.groups.yahoo.com/group/MyotonicDystrophy2/

Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
http://health.groups.yahoo.com/group/PROMM/