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Myopathies
Websites
Offers an informational and support site for all myopathies.
http://home.cogeco.ca/~famadio/
Comprehensive professional resource at Washington University School of Medicine
http://www.neuro.wustl.edu/neuromuscular/
British information point for sufferers and their families of these disorders and associated muscle abnormalities.
http://tonilouise.tripod.com
Detailed information on some of the muscle diseases.
http://www.neuro.wustl.edu/neuromuscular/maltbrain.html
Comprehensive information about the medical condition rhabdomyolysis, complete with tables, pictures, and diagrams.
http://members.tripod.com/~baggas/rhabdo.html
Introduction to myopathies, ask a doctor forum.
http://www.neurologychannel.com/myopathies/
Information and contacts regarding Nemaline Myopathy
http://www.davidmcd.freeuk.com/
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_...dical/disorders/periodic_doc.htm
Also known as inflammatory myopathy, an information sheet compiled by National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_...ical/disorders/inclusion_doc.htm
Information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
http://www.ninds.nih.gov/health_...d_medical/disorders/myopathy.htm
Desmin related myopathy is a disorder characterized by accumulation of desmin in the muscle cells. It can be dominantly inherited or occur spontaneously, its effects can range from mild to severe.
http://www.desminopathy.plus.com
A non-profit organization with the primary goal of speeding up bio-medical research on IBM2, the Autosomal Recessive form of Hereditary Inclusion Body Myopathies (HIBM). Includes a message board.
http://www.hibm.org
Information and support for parents and medical professionals about x-linked, autosomal recessive, and autosomal dominant forms of MTM. Includes a web-based discussion group, newsletter, FAQs, articles, tips, current research, and family stories.
http://www.mtmrg.org/